About AltaVoice

Discover the Power of the PIN

Since 2007, we have built more than 80 PINs and inspired thousands of patients to join the movement to collect and share data as broadly as possible to benefit patients. We believe that advances are made when results are shared, information is collected in a standardized way, and when patients are at the center. Read our story.

What is a Patient Insights Network?

An AltaVoice PIN is an online platform for collecting health information from patients around the world. PIN data is safeguarded and shared to help researchers and drug developers understand the symptoms, diagnosis, test results, genetics, quality of life and cost of living with serious diseases and health conditions.  

What Happens When You Join

As a registered PIN member you can take health surveys, upload medical records and maintain your privacy while you learn about the latest research and clinical trials. You own your data. You opt-in and decide what to share and when you want to be contacted. We promise.  After you take a survey you can see responses and learn how others manage similar health challenges. De-identified data is also shared with researchers and companies working to improve care and find cures for diseases like yours. Make your voice heard. Join today.

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Seeking Advocacy Partners

We partner with advocacy organizations to unite the entire disease community in one global data collection effort. Join us!


AltaVoice - A Trusted Intermediary


AltaVoice is a health data company that protects patient privacy. We build Patient Insights Networks that amplify the voice of patients to help researchers and drug developers find better treatments, faster.


AltaVoice connects PIN participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.