Contact Us

If you have questions about your participation in the registry, please contact us:


180 Warren Road
San Mateo, CA 94401

For technical support, please contact:


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Seeking Advocacy Partners

We partner with advocacy organizations to unite the entire disease community in one global data collection effort. Join us!


AltaVoice - A Trusted Intermediary


AltaVoice is a health data company that protects patient privacy. We build Patient Insights Networks that amplify the voice of patients to help researchers and drug developers find better treatments, faster.


AltaVoice connects PIN participants with advocacy organizations, clinicians, researchers and drug developers for the benefit of all.