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Welcome to the Trisomy 18 International Patient Registry – a research database of families and children impacted by a Trisomy 18 diagnosis – past, present and future.  The purpose of this registry is to accelerate interest and investment in biomedical research to change how Trisomy 18 is understood and treated so that fewer families lose their precious children to this condition in early life.  The Registry is developed with the generous support of friends and families to the Trisomy 18 Foundation.  To learn more about Trisomy 18 and how to support the development of the Registry, please visit www.trisomy18.org.

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Every Child’s Story Counts!

1 out of every 3000 births in the United States is a child with Trisomy 18, many of them stillborn. That’s 10 new parents every day facing the heart-breaking experience known to us parents before them. Your willingness to share information about your child and your family’s experience with Trisomy 18 can make a difference to those future parents. Scientists and Doctors can’t proceed with their research without our help and our data.

Your participation in the Trisomy 18 International Patient Registry ensures that your family’s experience and your child’s life impacted by Trisomy 18 will make a significant contribution to changing how Trisomy 18 is understood and treated for future families – so that fewer families will lose their precious children to this condition early in life. Register Today! You are the key to progress being made.