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Welcome and thank you for participating in the CRAVAT Patient Insights Network (PIN). Every addition to this registry will give epithelioid hemangioendothelioma (EHE) patients, their loved ones, physicians and other medical professionals an excellent opportunity to find answers to a rare health problem. Finding treatments that work and learning how the disease progresses is so important to helping our community of affected individuals. Please return often to update your status and see if there are any research activities in which you can participate. The more we contribute, the better we can understand what we are fighting.

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If you are an EHE patient and will be undergoing surgery in the near future, please contact the office of Dr. Brian Rubin, Anatomic Pathology Department of the Cleveland Clinic at 216-445-5551 to see about contributing your tumor specimen to his important research. Thank you.