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Illness is not a personal problem

It takes whole communities to help people living with medical conditions lead healthier and happier lives. The more data we collect about an illness, the closer we can get to helping communities find treatments that work.  Once registered, view the collected data and learn from others.  Your contact information is NEVER shared.

Putting the patient back into patient data

You are the expert in your own health. By providing your medical information, you're giving researchers a new look at disease. Anyone with FCS can contribute data, and anyone who needs the data can access it. We’re making information as useful, comprehensive and safe as it can possibly be.

Registration takes just 10-15 minutes, but the data you provide lasts a lifetime. 

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Do You Have:

  • Familial chylomicronemia syndrome (FCS)
  • Familial lipoprotein lipase deficiency (LPL deficiency or LPLD)
  • Hyperlipoproteinemia Type 1

Severe hypertriglyceridemia (severe high triglycerides) is seen in conditions such as familial hypertriglyceridemia, chylomicronemia syndrome, LPLD and others. In this rare disorder, the level of triglycerides (a type of fat) in a person's blood are higher than normal. The condition is not associated with a significant increase in cholesterol levels.

If you have been diagnosed with severe high triglycerides, please register and complete a medical questionnaire and help researchers discover treatments.

Spread the word, download the LPLD Connect flyer and link to the registry!