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Moving Hydrocephalus Research Forward

Hydrocephalus is a complex condition with many causes and a wide range of complications, impairments, and co-morbidities. Unfortunately, little is known about progression of the condition over time and even less is known about what new challenges patients face as they get older.

This Patient Insights Network (PINI) will help researchers better understand the condition and the challenges the patient community faces in order to improve quality of life and develop new treatment options.

The registry is designed to be inclusive of all ages and types of hydrocephalus. So, if you are young or old, developed hydrocephalus in infancy, as the result of a genetic mutation, acquired hydrocephalus after a brain injury, or have Normal Pressure Hydrocephalus, please join the registry and help researchers better understand you and the condition.

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About Us

The Hydrocephalus Patient Insights Network can improve the lives of those affected by the condition. We will accomplish this by collaborating with patients, caregivers, researchers and industry, raising awareness, and making possible innovative, high-impact research to prevent, treat and ultimately cure hydrocephalus.