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Welcome to the IETF essential tremor national registry. The purpose of the registry is to create a comprehensive database of individuals with essential tremor to better identify the impact of this condition that affects up to 10 million people in the U.S. and many more world-wide. While essential tremor has been considered benign by many in the healthcare community, we know this is not the case. Your help will provide the research community the data to determine what areas need further addressing so effective treatments and eventually a cure can be found.

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The IETF Mission

The IETF is a 501(c)3 non-profit organization that funds research to find the cause of essential tremor that leads to treatments and a cure, increases awareness, and provides educational materials, tools, and support for healthcare providers, the public and those affected by ET.

Joining the registry is important because it raises the visibility of the disease and sends an important message to the research community that more effective treatments are desired by the patient population.