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Welcome to the KCNQ2 Cure Alliance’s International Registry. The purpose of this registry is to consolidate information from individuals with KCNQ2 related epilepsy into a single database, which will be utilized by researchers to understand KCNQ2 related epilepsies better.


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The KCNQ2 Cure International Patient Registry will organize a system of information that will use observational study methods to collect uniform data (clinical and other) to evaluate specified outcomes for KCNQ2 epileptic mutations, condition or exposure, and that serves one or more predetermined scientific, clinical, or policy purpose. 

 

In addition to providing clinically relevant data that are meaningful to patients and providers, this registry will have the ability to provide data on KCNQ2 mutations not typically studied. The KCNQ2 registry can offer adaptable designs and data collection strategies, making them particularly useful when treatments are rapidly changing. The registry will reveal potential crucial data for scientists that will speed up the development of drugs and new treatments for individuals with KCNQ2 mutations.