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Welcome to The Romberg’s Connection Patient Registry. We hope you will join us in coming together to provide information on Parry Romberg Syndrome. Very little research has been done on Parry Romberg Syndrome. Our goal is to provide information from those affected with this rare disorder. This information can be accessed by the research community.

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About Us

The Romberg’s Connection is an international support group for individuals and families whose lives are affected by Parry Romberg Syndrome. We have come together to share information and offer our strength, courage, support and friendship to one another.