Welcome to The Romberg’s Connection Patient Insights Network

  

Join patients around the world in building the PIN community.

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Find out about research studies and clinical trials.

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Advance research and speed development of new treatments.

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W
elcome to the Romberg’s Connection Patient Insights Network (PIN). We hope you will join us in coming together to provide information on Parry Romberg syndrome. Our goal is to gather de-identified information and share it with the research community, sparking a broader understanding of the rare disorder for knowledge and treatment.
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W
elcome to the Romberg’s Connection Patient Insights Network (PIN). We hope you will join us in coming together to provide information on Parry Romberg syndrome. Our goal is to gather de-identified information and share it with the research community, sparking a broader understanding of the rare disorder for knowledge and treatment.

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